I was
nervous in 1989 during the first of my three six-week physical therapy
internships. This one was at a pediatric clinic located in a minimall in
Orange County, California. The woman who ran the place, Jessica, was an
extremely talented and knowledgeable therapist who was totally compassionate
with her young clients and their parents, but who was hard as nails with
everyone else.
The
children, whose ages ranged from less than a year old through the teens,
were often severely disabled. Many had been victims of near-drowning accidents
in southern California swimming pools--accidents that left them brain-damaged.
Jessica said: “No one with a small child should live in a house
with a swimming pool.”
In addition
to disabilities in language and cognition, these children often had severe
motor problems--especially if they had abnormal muscle “tone.” With abnormal
tone, one set of muscles can be very weak--while an opposing set goes berserk,
tenses up, and won’t let go. Older people who have had strokes often get
abnormal tone on the affected side--arms can draw up at the elbow while
wrists curl and fingers clench; legs can go stiff with the toes pointing
down and the heelcords developing fixed contractures. Many of the near-drowners
at Jessica’s clinic had abnormal tone in their trunk extensors--the muscles
that enable you to arch back and look at the ceiling. Physical therapy
techniques, including good positioning practices, can help to reduce abnormal
muscle tone.
Abnormal
tone in an adult is bad enough, but in a child it can totally derange the
course of development. Subjected to the constant unbalanced pull of muscles,
bones grow crooked. I saw one man in his thirties, who had nearly drowned
at the age of two. He had grown with such extreme extensor tone that the
back of his head almost touched his buttocks, and he was stuck there--that’s
how his skeleton was shaped. That horrendous outcome could probably have
been improved with good positioning when he was young. But now, he was
bedbound in an institutional care facility, and dependent on others for
personal hygiene, for eating, for repositioning to prevent bedsores, and
for all his other basic needs.
Abnormal
tone can prevent a child from rolling, crawling, or sitting up. This in
turn causes still more disability, because these skills are prerequisite
for learning other skills--skills that in turn are prerequisite for still
more advanced skills, and so on. As Jessica taught me, children learn to
move--and move to learn. The child sees a bright toy. She rolls or crawls
over to it, shakes it, explores it, and learns from it--but that learning
doesn't happen if she can’t move.
Still,
abnormal tone is not itself the problem; the problem lies in the results
of that tone. I’ve seen therapists obsessed with addressing the flexor
tone in a patient’s undeniably nonfunctional arm, when there were much
more practical things they could have been working on.
My favorite
story from the pediatric internship is when Jessica put me on the spot,
really making me sweat. “What’s wrong with this child?” she demanded, as
we stood over the small boy on the mat below. My head was swimming with
technical information from physical therapy school, and this sounded like
another test. “Asymmetric tonic neck reflex?” I tried. “No,” she shot back.
“Weak abdominals?” No again. “Trunk extensor tone?” “No!” she nearly shouted
this time. “OK, Jessica,” I said, “I give up. What’s wrong with this child?”
After a dramatic pause with penetrating eye contact, she gave me the answer:
“This child is two years old, but he can’t roll, he can’t sit up, he can’t
stand or walk, and he can’t hold anything in his hands.” Then she walked
away, leaving me to work with the boy, my head still spinning.
“I knew
all that,” I muttered silently, thinking, she probably does this with all
her interns; what the hell is she trying to prove? Then came the sudden
and unforgettable realization that I’m sure she wanted to elicit: The Big
Picture. Don’t forget the big picture. All those details might (or might
not) be relevant when you’re working out your plan to address the real
problems, but the details themselves aren’t what’s important. Keep your
focus on the things that really matter.